Well, I started this blog page mainly to keep everyone informed about Trae and Riley and anything going on with them and their health. So, here's the latest update on Trae and our latest doctor's apppointment.
For anyone who might not know, Trae and Riley have the same heart condition. It's called hypertrophic cardiomyopathy. Basically, that means that the left ventricle of their hearts is too thick. Their heart has to work harder to fill up and empty completely, and if the muscle were to get too thick, it could block blood flow. They are both on the same medication (different doses, of course), a beta-blocker, to slow down their heart, so it doesn't have to work as hard.
We've been going to the cardiologist since both of them were babies. We usually go about every 6 months for an EKG and sometimes an Echo, sometimes a chest xray. Riley's condition is fine right now. The medication is helping, and everything looks fine.
Last summer, however, after doing an echo on Trae, our physician told us that his condition had progressed quite a bit, and his heart was getting thicker. After showing the echo to the other cardiologists and surgeons, they decided that surgery would be the best option for Trae right now. It isn't urgent at this point, but it is something that needs to be fixed. We decided to wait for a while - Trae and I were both starting school. Well, it's been about a year now, and there hasn't been any change in his condition - for better or worse. So, we have decided to go ahead with the surgery. The problem now is that Trae has some dental work scheduled for Aug, and our doctor would like that to be moved up and done before having open heart surgery. Having his mouth cleaned up would lower the risk for infection. (He's having 2 cavities fixed in the hospital, because he refuses to sit and let them do it in the office)
So...if we can get the dental surgery moved up, then we will be doing the heart surgery shortly after, hopefully by the end of July. If not, then we will probably wait again so that he doesn't have to miss a lot of school. Christmas break maybe. We'll see what happens.
As for Riley, he is having a minor surgery done on June 20th to repair a hernia. We have been through this exact operation 3 times already. Trae had this type of hernia (hydrocele inguinal hernia) on both sides, and Riley has already had this on his right side. So, we're not too nervous, but we do want it to be done with.
If I've confused anyone or any questions, just ask! And thanks in advance for all your prayers!
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1 comment:
Thanks for taking the time to start this blog! I am always wondering & praying about this but usually forget to ask you about updates!
Does it make you feel better, now that you are going through nursing school, to know more about what the doctors are saying/doing? If anything, I would say that for this very reason, going in to nursing school was a great idea for you!
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